tag:blogger.com,1999:blog-6910497790985764751.post4806095968357795378..comments2023-06-11T06:04:33.281-07:00Comments on Life by List: The New NormalEmmaNadinehttp://www.blogger.com/profile/11813648613912843721noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-6910497790985764751.post-57058151903254417482013-01-01T17:01:12.931-08:002013-01-01T17:01:12.931-08:00Thanks for this advice. The scooter idea is great!...Thanks for this advice. The scooter idea is great!EmmaNadinehttps://www.blogger.com/profile/11813648613912843721noreply@blogger.comtag:blogger.com,1999:blog-6910497790985764751.post-13398565310466069522012-12-31T17:13:17.951-08:002012-12-31T17:13:17.951-08:00I totally empathize. I was diagnosed with Lupus t...I totally empathize. I was diagnosed with Lupus three years ago. My brain fog in my opinion is the worst symptom. As frustrating as it is to have no control of when I will be able to function, or to have 5 "ologists" before I am even 40, not being able to articulate myself or recall a simple every day word is by far the worst symptom of all!<br /><br />Interacting with a group of people is hard for me too. When there are multiple converstations/events going on, I can't focus on anything at all. I can no longer deal with ambient noise.<br /><br />I also only plan one thing at a time, and sometimes that plan changes too :( <br /><br />I would encourage you to try to go to Disneyland. Get there the night before so you can rest. Stay as close to the resort as possible so you can take a midday break. And don't try to see the entire park in one visit - hit the highlights. Disney is really good about accommodating people with a special need - they allow families with autistic children to get a pass that allows them to go to the front of the line. You could always rent one of those scooters to cut down on your walking.<br /><br />We had a blast at Disney World. On one night when I was exhausted and felt like I couldn't go out, we ordered pizza, let the kids swim in the hotel pool and watched movies in our hotel room. It was still fun!<br /><br />Hope 2013 brings you more good days than bad!Clairhttps://www.blogger.com/profile/16645550682762710435noreply@blogger.com